Support Groups A-Z

• the Ministry of Social Development national directory of organisations which you can search by region and by service type (for example, disability issues, health, family violence, help lines, youth and children)
• the directory of New Zealand health and disability support and information groups for rare and common disorders at the NZORD (New Zealand Organisation for Rare Disorders) website
• the listing of New Zealand health and disability support groups at the "everybody" website

• Addison’s Network (New Zealand)
• ADHD Online Support Group (New Zealand)
• Allergy New Zealand
• Anxiety Disorders (see Phobic Trust of New Zealand)
• Arthritis New Zealand
• Asperger Syndrome (see Autism New Zealand or Cloud 9 Children's Foundation New Zealand or Jen Birch's Personal Asperger Syndrome Web Site) 
• Asthma and Respiratory Foundation of New Zealand
• Asthma New Zealand
• Autistic Spectrum Disorder (see Autism New Zealand or Cloud 9 Children's Foundation New Zealand or Jen Birch's Personal Asperger Syndrome Web Site)
• Autism New Zealand

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B

• Barnardos New Zealand
  An organisation providing services to children and families throughout New Zealand
• Bedwetting (see KEEA - Kiwi Enuresis Encopresis Association or New Zealand Continence Association)
• Blindness (see Royal New Zealand Foundation for the Blind)
• Bone Marrow Transplant Children (see IDFNZ (Immune Deficiencies Foundation of New Zealand))
• Brain Injury Association New Zealand
• Breastfeeding (see La Leche League New Zealand)   

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C

• Cancer (see Child Cancer Foundation or CanTeen)
• CanTeen
  Supports young people aged 13-24 years living with cancer or a life-threatening blood disorder and their teenage siblings.
• Carers New Zealand
  Grassworks network for New Zealanders who care for sick, injured and disabled family members at home.
• Cerebral Palsy (see Carlson School for Cerebral Palsy or Cerebral Palsy Society of New Zealand)
• Child Cancer Foundation
• Cleft Lip and Palate Support Group
• Cloud 9 Children's Foundation New Zealand
  Asperger Syndrome support and information organisation. 
• Cochlear Implant (see Cochlear Implant Foundation of New Zealand and The New Zealand Cochlear Implant Programme and The Hearing House)
• Coeliac Society of New Zealand
• Continence Problems (see New Zealand Continence Association)
  Includes section on Incontinence in Children & Bedwetting (Nocturnal Enuresis)
• Counselling services: Free, national, professional telephone counselling service for all five to 18 year olds that offers anonymous, confidential and child-centred counselling seven days a week between noon and midnight (see What's Up). A web site designed to complement National 0800 Kidsline (0800 543 754), a 24 hour telephone help line for school-aged children (five to 18 years) (see KidsLine). A web site which complements a free telephone counselling service for young people (0800 376 633) (see Youthline).
• Crohn’s & Colitis Support Group (CCSG)
• Cystic Fibrosis Association of New Zealand

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D

• Diabetes New Zealand
• Disabilities - General (see Enable New Zealand or Halberg Trust or New Zealand Riding for the Disabled Association Inc or Weka)
• Disabilities - Intellectual (see Halberg Trust or IHC New Zealand or New Zealand Riding for the Disabled Association Inc or Rescare New Zealand or Weka)
• Disabilities - Physical (see Enable New Zealand or Halberg Trust or New Zealand CCS or New Zealand Riding for the Disabled Association Inc or Weka)
• Disability Support Services - (see Enable New Zealand or Weka)
• Down Syndrome (see New Zealand Down Syndrome Association)
• Dwarfism (see Little People of New Zealand)
• Dyslexia (see SPELD New Zealand - Specific Learning Disabilities Federation)
• Dyspraxia (see SPELD New Zealand - Specific Learning Disabilities Federation)

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E

• Eczema (see Itchy Kids)
• Ehlers-Danlos Foundation of New Zealand
• Enable New Zealand
  Enable New Zealand is a multi-service organisation working to assist disabled people and their families/whanau, employers, health professionals and disability support organisations. Some of Enable's services are available nationwide, while other services are provided regionally.
• Encopresis (see KEEA - Kiwi Enuresis Encopresis Association or New Zealand Continence Association) 
• Enuresis (see KEEA - Kiwi Enuresis Encopresis Association or New Zealand Continence Association)
• Epilepsy New Zealand

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• Gastric Reflux (see Crying Over Spilt Milk, the website of GRSNNZ - Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust)
• Gastro-oesophageal Reflux (see Crying Over Spilt Milk, the website of GRSNNZ - Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust)
• General Disabilities (see Enable New Zealand or New Zealand Riding for the Disabled Association Inc or Weka)
• Grandparents Raising Grandchildren
• Grief (see Skylight or SANDS New Zealand (Stillborn and Neonatal Death Support) or SAFDA (Support after Foetal Diagnosis of Abnormaility) email: safda.info@nzord.org.nz or Twin and Multiple Birth Loss New Zealand)

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H

• Haemochromatosis (see IRONZ New Zealand Haemochromatosis Support and Awareness Group)
• Haemophilia New Zealand
• Halberg Trust
  Supports children with a disability to be involved in active leisure or recreation of their choice, alongside their peers in an inclusive environment.
• The Hearing House
• Hearing Loss - Severe to Profound (see Cochlear Implant Foundation of New Zealand or The New Zealand Cochlear Implant Programme or The Hearing House)
• Heart Children New Zealand

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I

• IDFNZ (Immune Deficiencies Foundation of New Zealand)
  

  IDFNZ is a non-profit organisation dedicated to supporting children, teenagers and adults with diagnosed PID (Primary Immune Deficiency) disorders. The Kids Foundation is the welfare arm of IDFNZ and is responsible for caring for suspected or diagnosed PID children, teenagers and their immediate families, as well as BMT (bone marrow transplant) children.

• IHC New Zealand 
  New Zealand’s largest provider of services to people with intellectual disabilities and their families.
• Immune Deficiencies (see IDFNZ (Immune Deficiencies Foundation of New Zealand))
• Intellectual Disabilities (see IHC New Zealand or New Zealand Riding for the Disabled Association Inc or Rescare New Zealand or Weka)
• Iron Overload Disorder (see IRONZ New Zealand Haemochromatosis Support and Awareness Group)
• IRONZ New Zealand Haemochromatosis Support and Awareness Group
• Itchy Kids
  Support group for parents of children with eczema.

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J

• Jen Birch's Personal Asperger Syndrome Web Site

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K

• K.E.E.A. Kiwi Enuresis Encopresis Association
  Supports families who have children with wetting and soiling problems.
• Kidney disorders (see Kidney Kids and New Zealand Kidney Foundation)
• Kidney Kids
• Kids Foundation (see IDFNZ (Immune Deficiencies Foundation of New Zealand))
• KidsLine
  A web site designed to complement National 0800 Kidsline (0800 543 754), a 24 hour telephone help line for children under 13 years of age.

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L 

• La Leche League New Zealand
  For breastfeeding support and education.
• Learning Disabilities (see SPELD New Zealand - Specific Learning Disabilities Federation)
• Leukaemia and Blood Foundation of New Zealand
• Little People of New Zealand
• Lupus (see Arthritis New Zealand or Lupus Trust of New Zealand)
• Lupus Trust of New Zealand 
• Lysosomal Diseases New Zealand

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M

• Mental Health (see Headspace or Mental Health Foundation of New Zealand).
• Mental Health Foundation of New Zealand
• Muscular Dystrophy Association of New Zealand 

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N

• New Zealand CCS
  A social profit organisation that works with children and adults with disabilities.
• The New Zealand Cochlear Implant Programme 
• New Zealand Continence Association
• New Zealand Down Syndrome Association
• New Zealand Kidney Foundation 
• New Zealand Organisation for Rare Disorders
• New Zealand Riding for the Disabled Association Inc
  Offers therapy and rehabilitation; education, behaviour modification and social contact; horse riding for sport and recreation for people with disabilities.

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P

• Parent and Family Resource Centre
  An umbrella organisation for a network of support groups and parents in Auckland, New Zealand. The main aim of the centre is to create support and skill development opportunities that can empower parents of children with special needs. The organisation is parent driven, parent focused and open to all in the disability community.
• Parent to Parent
  Parent to Parent New Zealand is a national organisation working with families and children affected by disabilities, health impairments, rare syndromes, and special needs. Parent to Parent currently has contacts available for 638 different disabilities and information relating to over 1800 disorders. Support groups both in New Zealand and overseas are listed for over 3500 conditions.
• Parentcare
  ParentCare exists to support the parents of sick and premature babies.
• Perthes Support Group (Perthes disease)
• Phobias (see Phobic Trust of New Zealand or Mental Health Foundation of New Zealand)
• Physical Disabilities (see Enable New Zealand or New Zealand CCS or New Zealand Riding for the Disabled Association Inc or Weka)
• Prader-Willi Syndrome Association of New Zealand 
• Premature Babies (see Parentcare)
• Primary Immune Deficiency Disorders (see IDFNZ (Immune Deficiencies Foundation of New Zealand))

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R

• Rare Disorders (see New Zealand Organisation for Rare Disorders)
• Reflux, Gastric (see Crying Over Spilt Milk, the website of GRSNNZ - Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust)
• Reflux, Gastro-oesophageal (see Crying Over Spilt Milk, the website of GRSNNZ - Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust)
• Rescare New Zealand
• Royal New Zealand Foundation for the Blind

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S

• SAFDA
  Support after Foetal Diagnosis of Abnormaility
  Email: safda.info@nzord.org.nz
• SANDS New Zealand
  Stillborn and Neonatal Death Support
• Schizophrenia Fellowship NZ
• Skylight
  Skylight is a national organisation working to support children, young people and their families who have been affected by change, loss and grief.
• Soiling (see KEEA - Kiwi Enuresis Encopresis Association or New Zealand Continence Association)
• Speakeasy - New Zealand Speak Easy Association Inc.
  A support group for people who stutter. 
• SPELD New Zealand - Specific Learning Disabilities Federation
• Stillborn and Neonatal Death Support (see SANDS New Zealand)
• Stuttering (see Speakeasy - New Zealand Speak Easy Association Inc.)
  

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T

• Twin and Multiple Birth Loss NZ

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U

• Urge/Whakamanawa
  A youth health and information service designed to assist young people (primarily 15-18 year olds) find useful information or resources to help them regarding a variety of youth related topics.

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W

• Weka
  New Zealand's disability information web site.
• What's Up
  Free, national, professional telephone counselling service for all 5 to 18 year olds that offers anonymous, confidential and child-centred counselling 7 days a week between noon and midnight.

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Y

• Youth Health (see Urge/Whakamanawa)
• Youthline
  A web site which complements the free telephone counselling service for young people (0800 376 633).
  

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© The Paediatric Society of New Zealand and Starship Foundation 2005 - 2008

This fact sheet was printed on: 08-Sep-2008 07:44pm