Childhood cancer - more information and support
Childhood cancer - more information and support
New Zealand children's cancer services have recommended a listing of reliable, independent websites. Talk to your doctor about whether the information is relevant to your child's cancer.
General childhood cancer websites
Royal Children's Hospital, Melbourne, Australia www.rch.org.au/ccc
The Children's Cancer Centre has easy-to-read information and advice about diagnoses, treatments and living with cancer.
CCLG (The Children's Cancer and Leukaemia Group), U.K. www.cclg.org.uk
CCLG has information for patients, parents, family and friends affected by childhood cancer. There is also a useful section on sibling information.
The Royal Marsden Hospital, U.K. www.royalmarsden.nhs.uk
The Royal Marsden Hospital's website provides information tailored to patients and healthcare professionals interested in the work of the hospital, including sections on children's cancers, living with cancer, children's and young adults' services and guides for teachers.
CureSearch for Children's Cancer, U.S. www.curesearch.org
CureSearch is a section of the Children's Cooperative Oncology Research Group known as COG. The CureSearch website provides access to advice offering psychosocial support for improving quality of life.
Paediatric Integrated Cancer Service (PICS), Victoria Australia www.pics.org.au
Paediatric Integrated Cancer Service (PICS) is funded by the Victorian Government to lead a networked paediatric cancer care system for Victoria. Their website has a section for families and has information about diagnosis and treatment, coming off treatment, surveillance and survivorship.
AboutKidsHealth , Canada www.aboutkidshealth.ca
AboutKidsHealth is a Canadian health education website for children, youth and their caregivers. Their learning hub section has useful information on the different types of cancer.
Websites for children and adolescents
The AYA Cancer Network www.ayacancernetwork.org.nz
The AYA network connects hands-on health care and support providers from many disciplines and organisations to improve AYA cancer services in New Zealand.
The Network provides a forum for nurses, doctors, social workers, dentists, pharmacists, psychologists, dieticians, educators, counselors, other allied health professionals and patient and whānau support providers to find new and innovative ways of delivering care to 12-24-year-olds with cancer.
National Child Cancer Network www.childcancernetwork.org.nz
The National Child Cancer Network brings together health professionals, carers and stakeholder organisations to work collaboratively and provide leadership for service development across child cancer services in New Zealand.
Teenage Cancer Trust, UK, www.teenagecancertrust.org
Teenage Cancer Trust is a cancer care and support charity in the UK that exists to improve the cancer experience of young people aged 13–24.
Support groups in New Zealand
CCF (Child Cancer Foundation) www.childcancer.org.nz
CCF is a national organisation providing ongoing practical, emotional and financial help and support to children and their families experiencing cancer. Visit the CCF website for information about support services and for the contact details of the division nearest you.
Cancer Society of New Zealand www.cancernz.org.nz
The Cancer Society is the leading organisation dedicated to reducing the incidence of cancer and ensuring the best cancer care for everyone in New Zealand.
CanTeen is an organisation for 13 to 24-year-olds living with cancer, whether they are dealing with their own cancer or that of a sibling or parent.
Phone: 0800 2268336
Leukaemia & Blood Cancer Foundation www.leukaemia.org.nz
Leukaemia & Blood Cancer New Zealand is the national organisation dedicated to supporting patients and their families living with a blood cancer – leukaemia, lymphoma or myeloma or a related blood condition.
Skylight is a charitable trust dedicated to helping children and young people deal with change, loss and grief.
Phone: 0800 299100
Make a Wish Foundation www.makeawish.org.nz
The Make a Wish Foundation grants cherished wishes to children and young people who are living with a life-threatening illness.
Contact: 0800 625329
Camp Quality (New Zealand) www.campqualitynz.org.nz
A charitable trust which holds annual, week-long residential camps for children from 5 to 16 with cancer. The aim is to provide high quality, recreational experiences in a safe and secure environment. Phone: 0508 22678 for the manager of your region.
Books, DVDs and CDs
Ask about borrowing books, DVDs and CDs for adults, adolescents and children. You can borrow these from The Child Cancer Foundation, CanTeen, The Cancer Society or your treatment centre.
You can also buy mailorder books, DVDs and CDs from Compassion books in the U.S.
The Child Cancer Foundation
Phone the National Office 0800 4 CHILD (0800 4 24453) for the contact details of your nearest branch.
CanTeen is an organisation for 13 to 24-year-olds living with cancer, whether they are dealing with their own cancer or that of a sibling or parent. Phone 0800 226 8336.
The Cancer Society
Phone the National Office on 64 4 494 7270 for the contact details of your nearest branch.
Your treatment centre
Ask your nurse, social worker, play specialist or doctor for recommendations.
Compassion books, U.S. www.compassionbooks.com
Mail order books, DVDs and audios to help children and adults through serious illness, death and dying, grief, bereavement and loss. Reviewed and selected by knowledgeable professionals.