Childhood cancer - more information and support

Childhood cancer - more information and support

New Zealand children's cancer services have recommended a listing of reliable, independent websites. Talk to your doctor about whether the information is relevant to your child's cancer.

General childhood cancer websites

Thumbnail image of website homepageRoyal Children's Hospital, Melbourne, Australia www.rch.org.au/ccc

The Children's Cancer Centre has easy-to-read information and advice about diagnoses, treatments and living with cancer.

CCLG (The Children's Cancer and Leukaemia Group), U.K. www.cclg.org.ukThumbnail image of CCLG website homepage

CCLG has information for patients, parents, family and friends affected by childhood cancer. There is also a useful section on sibling information.

The Royal Marsden Hospital, U.K. www.royalmarsden.nhs.uk

Thumbnail image of Royal marsden website homepageThe Royal Marsden Hospital's website provides information tailored to patients and healthcare professionals interested in the work of the hospital, including sections on children's cancers, living with cancer, children's and young adults' services and guides for teachers.

CureSearch for Children's Cancer, U.S. www.curesearch.orgThumbnail image of  Curesearch website homepage

CureSearch is a section of the Children's Cooperative Oncology Research Group known as COG. The CureSearch website provides access to advice offering psychosocial support for improving quality of life.

Paediatric Integrated Cancer Service (PICS), Victoria Australia PICS websitewww.pics.org.au

Paediatric Integrated Cancer Service (PICS) is funded by the Victorian Government to lead a networked paediatric cancer care system for Victoria. Their website has a section for families and has information about diagnosis and treatment, coming off treatment, surveillance and survivorship.

AboutKidsHealth , Canada www.aboutkidshealth.caAboutkidshealth website

AboutKidsHealth is a Canadian health education website for children, youth and their caregivers. Their learning hub section has useful information on the different types of cancer.

Websites for children and adolescents

AYA websiteThe AYA Cancer Network www.ayacancernetwork.org.nz

The AYA network connects hands-on health care and support providers from many disciplines and organisations to improve AYA cancer services in New Zealand.

The Network provides a forum for nurses, doctors, social workers, dentists, pharmacists, psychologists, dieticians, educators, counselors, other allied health professionals and patient and whānau support providers to find new and innovative ways of delivering care to 12-24-year-olds with cancer.

National Child Cancer Network www.childcancernetwork.org.nzNational child cancer network website

The National Child Cancer Network brings together health professionals, carers and stakeholder organisations to work collaboratively and provide leadership for service development across child cancer services in New Zealand.

Teenage Cancer Trust, UK, www.teenagecancertrust.orgTeen cancer trust website

Teenage Cancer Trust is a cancer care and support charity in the UK that exists to improve the cancer experience of young people aged 13–24.

Support groups in New Zealand

CCF (Child Cancer Foundation) www.childcancer.org.nzThumbnail image of CCF website homepage

CCF is a national organisation providing ongoing practical, emotional and financial help and support to children and their families experiencing cancer. Visit the CCF website for information about support services and for the contact details of the division nearest you.

Cancer society websiteCancer Society of New Zealand www.cancernz.org.nz

The Cancer Society is the leading organisation dedicated to reducing the incidence of cancer and ensuring the best cancer care for everyone in New Zealand.

Canteen www.canteen.org.nzThumbnail image of canteen website homepage

CanTeen is an organisation for 13 to 24-year-olds living with cancer, whether they are dealing with their own cancer or that of a sibling or parent.
Phone: 0800 2268336

Leukaemia & Blood Cancer Foundation www.leukaemia.org.nzLBC website

Leukaemia & Blood Cancer New Zealand is the national organisation dedicated to supporting patients and their families living with a blood cancer – leukaemia, lymphoma or myeloma or a related blood condition.

Skylight www.skylight.org.nzThumbnail image of skylight website homepage

Skylight is a charitable trust dedicated to helping children and young people deal with change, loss and grief.
Phone: 0800 299100
Email:info@skylight-trust.org.nz

Make a Wish Foundation www.makeawish.org.nzThumbnail image of make a wish website homepage

The Make a Wish Foundation grants cherished wishes to children and young people who are living with a life-threatening illness.
Contact: 0800 625329
Email: nationaloffice@makeawish.org.nz

Camp Quality (New Zealand) www.campqualitynz.org.nz

Thumbnail image of camp quality website homepageA charitable trust which holds annual, week-long residential camps for children from 5 to 16 with cancer. The aim is to provide high quality, recreational experiences in a safe and secure environment. Phone: 0508 22678 for the manager of your region.

Books, DVDs and CDs

Ask about borrowing books, DVDs and CDs for adults, adolescents and children. You can borrow these from The Child Cancer Foundation, CanTeen, The Cancer Society or your treatment centre.

You can also buy mailorder books, DVDs and CDs from Compassion books in the U.S.

The Child Cancer Foundation

Phone the National Office 0800 4 CHILD (0800 4 24453) for the contact details of your nearest branch.

CanTeen

CanTeen is an organisation for 13 to 24-year-olds living with cancer, whether they are dealing with their own cancer or that of a sibling or parent. Phone 0800 226 8336.

The Cancer Society

Phone the National Office on 64 4 494 7270 for the contact details of your nearest branch.

Your treatment centre

Ask your nurse, social worker, play specialist or doctor for recommendations.

Compassion books, U.S. www.compassionbooks.com

Mail order books, DVDs and audios to help children and adults through serious illness, death and dying, grief, bereavement and loss. Reviewed and selected by knowledgeable professionals.

All the pages in the childhood cancer section of this website have been written by health professionals who work in the field of paediatric oncology. They have been reviewed by the members of the National Child Cancer Network (NZ). Medical information is authorised by the clinical leader of the National Child Cancer Network.

This page last reviewed 24 August 2018.
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