Listing Of Information, Support & Resources On Palliative Care For Children

Listing Of Information, Support & Resources On Palliative Care For Children

Some New Zealand organisations and support groups which may be helpful depending on your child's illness. You could also check the links to more information about palliative care for children. 

Key points to remember about palliative care

  • palliative care is the care provided to children with life-limiting or life-threatening illnesses, and their families/whānau
  • it focuses on comfort and quality of life and support for the child and their family/whānau

More information and support

Specialist team in New Zealand

Starship Children's Hospital (NZ)
The Starship website provides information about the specialist palliative care team who are available to provide advice.

International website

Together for Short Lives (UK) www.togetherforshortlives.org.uk
A UK organisation working to achieve a better quality of life and care for every life-limited or life-threatened child or young person and their family.

New Zealand organisations and support groups

One of the following may be helpful to you depending on your child's illness:

Canteen www.canteen.org.nz
CanTeen is the New Zealand organisation supporting young people living with cancer. CanTeen was established to ensure that no young person in New Zealand living with cancer should ever have to feel alone. CanTeen is for anyone between the ages of 13 and 24 who is living with cancer. The organisation aims to provide a relaxed, friendly and fun environment where young people can share their thoughts and feelings with other young people whose lives have been affected by cancer.

Child Cancer Foundation www.childcancer.org.nz
The Child Cancer Foundation provides ongoing practical, emotional and financial assistance to children, and their families, whose lives have been changed forever by cancer.

Heart Kids www.heartnz.org.nz
Heart Kids (formerly @Heart or Heart Children) provides care and support to children with cardiac or heart conditions and their families.

Kidney Kids www.kidneykids.org.nz
Kidney Kids is a group of New Zealand parents and children, who are dealing with kidney issues, and who get together to share problems, solutions and good times.

Leukaemia and Blood Cancer New Zealand www.leukaemia.org.nz/how_we_can_help
Leukaemia and Blood Cancer New Zealand  support patients and their families. They provide educational materials, advocacy, education and support, and in some circumstances, are able to provide families with financial assistance. 

Muscular Dystrophy Association of New Zealand www.mda.org.nz
The Muscular Dystrophy Association provide a range of free services to people affected by neuromuscular conditions. They have family support workers based around New Zealand.

Rare Disorders New Zealand www.raredisorders.org.nz
Rare Disorders New Zealand provides support and information for patients and their families/​whānau living with a rare disorder in New Zealand.

Parent to Parent www.parent2parent.org.nz
A network of regional groups and trained volunteer support parents, Parent to Parent provides information and emotional support to families who have a child with a disability, special need or health impairment. There are more than 3600 different conditions covered by the service, ranging from the very common through to the rarest conditions. By contacting Parent to Parent, families can access written information relating to their child's condition, and also receive emotional support through talking with a trained volunteer Support Parent who knows and understands from personal experience the challenges, frustrations and special joy that comes from parenting a child with special needs.

This page last reviewed 07 April 2017.
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