The Children's Cancer Centre has easy-to-read information and advice about diagnoses, treatments and living with cancer.
CCLG has information for patients, parents, family and friends affected by childhood cancer. There is also a useful section on sibling information.
The Royal Marsden Hospital's website provides information tailored to patients and healthcare professionals interested in the work of the hospital, including sections on children's cancers, living with cancer, children's and young adults' services and guides for teachers.
CureSearch is a section of the Children's Cooperative Oncology Research Group known as COG. The CureSearch website provides access to advice offering psychosocial support for improving quality of life.
Paediatric Integrated Cancer Service (PICS) is funded by the Victorian Government to lead a networked paediatric cancer care system for Victoria. Their website has a section for families [8] and has information about diagnosis and treatment, coming off treatment, surveillance and survivorship.
AboutKidsHealth is a Canadian health education website for children, youth and their caregivers. Their learning hub section [10] has useful information on the different types of cancer.
The AYA network connects hands-on health care and support providers from many disciplines and organisations to improve AYA cancer services in New Zealand.
The Network provides a forum for nurses, doctors, social workers, dentists, pharmacists, psychologists, dieticians, educators, counsellors, other allied health professionals and patient and whānau support providers to find new and innovative ways of delivering care to 12 to 24-year-olds with cancer.
The National Child Cancer Network brings together health professionals, carers and stakeholder organisations to work collaboratively and provide leadership for service development across child cancer services in New Zealand.
Teenage Cancer Trust is a cancer care and support charity in the UK that exists to improve the cancer experience of young people from 13 to 24 years of age.
CCF is a national organisation providing ongoing practical, emotional and financial help and support to children and their families experiencing cancer. Visit the CCF website for information about support services [18] and for the contact details [19] of the division nearest you.
The Cancer Society is the leading organisation dedicated to reducing the incidence of cancer and ensuring the best cancer care for everyone in New Zealand.
CanTeen is an organisation for 13 to 24-year-olds living with cancer, whether they are dealing with their own cancer or that of a sibling or parent.
Phone: 0800 2268336
Leukaemia & Blood Cancer New Zealand is the national organisation dedicated to supporting patients and their families living with a blood cancer - leukaemia, lymphoma or myeloma or a related blood condition.
Skylight is a charitable trust dedicated to helping children and young people deal with change, loss and grief.
Phone: 0800 299100
Email:info@skylight.org.nz [27]
The Make a Wish Foundation grants cherished wishes to children and young people who are living with a life-threatening illness.
Contact: 0800 625329
Email: nationaloffice@makeawish.org.nz [29]
A charitable trust which holds annual, week-long residential camps for children with cancer aged from 5 to 16 years. The aim is to provide high quality, recreational experiences in a safe and secure environment. Phone: 0508 22678 for the manager of your region.
Ask about borrowing books, DVDs and CDs for adults, adolescents and children. You can borrow these from The Child Cancer Foundation, CanTeen, The Cancer Society or your treatment centre.
You can also buy mailorder books, DVDs and CDs from Compassion books in the U.S.
Phone the National Office 0800 4 CHILD (0800 4 24453) for the contact details of your nearest branch.
CanTeen is an organisation for 13 to 24-year-olds living with cancer, whether they are dealing with their own cancer or that of a sibling or parent. Phone 0800 226 8336.
Phone the National Office on 64 4 494 7270 for the contact details of your nearest branch.
Ask your nurse, social worker, play specialist or doctor for recommendations.
Mail order books, DVDs and audios to help children and adults through serious illness, death and dying, grief, bereavement and loss. Reviewed and selected by knowledgeable professionals.
All the pages in the childhood cancer section of this website [32] have been written by health professionals who work in the field of paediatric oncology. They have been reviewed by the members of the National Child Cancer Network (NZ). Medical information is authorised by the clinical leader of the National Child Cancer Network.
This page last reviewed 21 June 2021.
Email us [33] your feedback
Links
[1] https://www.rch.org.au/ccc
[2] https://www.cclg.org.uk/
[3] https://www.royalmarsden.nhs.uk/
[4] https://www.royalmarsden.nhs.uk
[5] https://curesearch.org/
[6] https://www.curesearch.org
[7] https://www.vics.org.au/
[8] https://www.vics.org.au/pics-families
[9] https://www.aboutkidshealth.ca
[10] https://www.aboutkidshealth.ca/hcp
[11] https://www.ayacancernetwork.org.nz/
[12] https://ayacancernetwork.org.nz/
[13] https://childcancernetwork.org.nz/
[14] https://www.teenagecancertrust.org/
[15] http://www.teenagecancertrust.org
[16] https://www.childcancer.org.nz/
[17] https://www.childcancer.org.nz
[18] https://childcancer.org.nz/support-for-families/
[19] https://childcancer.org.nz/support-for-families/family-hub/family-places/
[20] https://www.cancernz.org.nz
[21] https://cancernz.org.nz/
[22] https://www.canteen.org.nz/
[23] https://www.canteen.org.nz
[24] https://www.leukaemia.org.nz
[25] https://skylight.org.nz/
[26] https://www.skylight.org.nz
[27] mailto:info@skylight.org.nz
[28] https://www.makeawish.org.nz/
[29] mailto:nationaloffice@makeawish.org.nz
[30] https://www.campquality.org.nz/
[31] https://www.compassionbooks.com/
[32] https://www.kidshealth.org.nz/tags/childhood-cancer
[33] https://www.kidshealth.org.nz/contact?from=http%3A%2F%2Fwww.kidshealth.org.nz%2Fprint%2F460%3Flanguage%3Dton