Childhood cancer: Where to go for more information and support

Childhood cancer: Where to go for more information and support

A listing of reliable, independent websites recommended by the New Zealand Children's Cancer Services. You need to discuss information obtained from the Internet with your doctor to check its relevance to your child's cancer.

General childhood cancer websites

The following are reliable, independent websites recommended by the New Zealand Children's Cancer Services. You need to discuss information obtained from the Internet with your doctor to check its relevance to your child's cancer.

Royal Children's Hospital, Melbourne, Australia www.rch.org.au/ccc
The Children's Cancer Centre has easy-to-read information and advice.

Macmillan Cancer Support, UK www.macmillan.org.uk
Macmillan works with partners in the National Health Services, local government and health agencies in the UK. The Macmillan website has an information centre for children's cancers with links to selected sites containing age-related, supportive advice. See:

CCLG (The Children's Cancer and Leukaemia Group), UK www.cclg.org.uk
The CCLG website provides information for patients, parents, family and friends. There is also good sibling information and links. 

The Royal Marsden Hospital, UK www.royalmarsden.nhs.uk
The Royal Marsden Hospital's website provides information tailored to patients and healthcare professionals interested in the work of the hospital, including sections on children's cancers, living with cancer, children's and young adults' services and guides for teachers.

National Cancer Institute (U.S. National Institutes of Health) www.cancer.gov
The children's section of the National Cancer Institute website has information about treatment, clinical trials and a parent handbook. 

CureSearch for Children's Cancer, U.S. curesearch.org
CureSearch is a section of the Children's Cooperative Oncology Research Group known as COG. The CureSearch website provides access to advice offering psychosocial support for improving quality of life. 

St Jude's Children's Research Hospital, Philadelphia, U.S. www.stjude.org
The St Jude's website provides information including disease fact sheets in the patients' and parents' section. 

Memorial Sloan-Kettering Cancer Centre, U.S. www.mskcc.org
The Cancer Centre website provides information on paediatric cancer care, including information on childhood cancers and treatments and information for new families.

University of Michigan Comprehensive Cancer Centre, U.S. mcancer.org
The website provides information guides offering resource listings and an easily readable childhood cancer overview. 

University of Cincinnati Cancer Institute, US uchealth.com/cancer/living-with-cancer/resources

See the University of Cincinnati Cancer Institute website for resources offering valuable tips and advice on explaining cancer to children.

Websites for children and adolescents

Macmillan Cancer Support, UK www.macmillan.org.uk
The Macmillan website has the following section for teens:

Teens Living with Cancer, U.S. teenslivingwithcancer.org
This website offers sound medical information endorsed by the premier Children's Cooperative Oncology Research Group in North America (COG). It also provides effective psychosocial support for improving quality of life.

Support groups in New Zealand

CCF (Child Cancer Foundation) www.childcancer.org.nz
CCF is a national organization providing ongoing practical, emotional and financial help and support to children and their families experiencing cancer. Visit the CCF website for information about support services and for the contact details of the division nearest you.

Canteen www.canteen.org.nz
This is a special interest division of the Child Cancer Foundation dedicated to supporting young people living with cancer. It is a peer support network with educational and recreational activities, for cancer patients or siblings between 13 and 24 years of age. 'CanTeeners' support each other at home and in hospital.
Phone: 0800 2268336

Skylight skylight.org.nz
A charitable trust dedicated to helping children and young people deal with change, loss and grief.
Phone: 0800 299100
Email: info@skylight-trust.org.nz

Make a Wish Foundation www.makeawish.org.nz
The Foundation grants cherished wishes to children and young people who are living with a life-threatening illness.
Contact: 0800 625329
Email: nationaloffice@makeawish.org.nz

Camp Quality (New Zealand) Incorporated www.campqualitynz.org.nz
A charitable trust which holds annual, week-long residential camps for children from 5 to 16 with cancer. The aim is to provide high quality, recreational experiences in a safe and secure environment.
Phone: 0508 22678 for the manager of your region.

Books, videos and CDs

Ask about the books, videos and CDs for adults, adolescents and children which can be borrowed from:

  • The Child Cancer Foundation
    Phone the National Office 64 9 373 3670 for the contact details of your nearest Branch
  • CanTeen
    A Division of the Child Cancer Foundation especially for patients and siblings between the ages of 13 and 24 years. Phone 0800 2268336
  • The Cancer Society
    Phone the National Office 64 4 4947270 for the contact details of your nearest branch
  • Your treatment centre: Ask your nurse, social worker, play specialist or doctor for recommendations

Compassion books, U.S. www.compassionbooks.com
Mail order books, videos, and audios to help children and adults through serious illness, death and dying, grief, bereavement and loss. Reviewed and selected by knowledgeable professionals.

Acknowledgements

All the fact sheets in the Childhood cancer of this website have been written by health professionals who work in the field of paediatric oncology. They have been reviewed by the members of the National Child Cancer Network (NZ). Medical information is authorised by the National Child Cancer Network Clinical Leader.

This page last reviewed 04 March 2013.
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